Testimonials from hospitals
From Inherited Metabolic Disorders (IMD) Team at Birmingham Children's Hospital
From Nicky Mumford, Metabolic Clinical Nurse Specialist, Great Ormond Street Hospital
From Nicky Mumford, Metabolic Clinical Nurse Specialist, Great Ormond Street Hospital
“We are so grateful for the ongoing support provided by The Campbell Burns metabolic Trust. They are always quick and very flexible in dealing with all our families. It gives us confidence to have the support of a charity who we know we can rely on. They offer a great range of financial support for families with Inherited Metabolic Conditions. We cannot thank them enough for their ongoing support - keep up the good work.”
From Nicky Mumford, Metabolic Clinical Nurse Specialist, Great Ormond Street Hospital
From Nicky Mumford, Metabolic Clinical Nurse Specialist, Great Ormond Street Hospital
From Nicky Mumford, Metabolic Clinical Nurse Specialist, Great Ormond Street Hospital
"The Campbell Burns Metabolic Trust is the first charity that our families have had direct access to that can help almost straight away. Many of the families are really surprised what they are able to claim for. It has helped in so many amazing ways from supporting families with their travel to appointments, helping with paying bills and supporting families with essential kitchen appliances to be able to manage the very restricted low protein diet which in turn helps with compliance to treatment. Many of our families are struggling financially so being able to apply for relevant support and receiving it quickly is so helpful and makes life just a little bit easier. The children love their treats and fun days out which the Trust also supports. To be able to claim every six months is amazing! This charity is really making a difference!"
Testimonials from families
Recipient of a Breadmaker Grant:
Recipient of a Breadmaker Grant:
Recipient of a Breadmaker Grant:
"I would just like to say a huge thank you to you and your wonderful team for helping me and my child, we really appreciate your kindness, it has helped us greatly. My daughter has Tyrosinaemia, she cannot break down protein naturally, she is on a very low protein diet and is very restricted to what she is allowed to eat, she loves bread but she is not allowed to have it within her diet, thanks to the Campbell Burns Metabolic Trust she received a cheque for £100, which enabled me to buy a fantastic bread maker which makes wonderful protein free bread, she is due to start school shortly and because of her condition she can only have packed lunch, thanks to you all at The Campbell Burns Metabolic Trust she will now be able to have wonderful sandwiches with her school friends at lunch time."
Recipient of an Experience Grant
Recipient of a Breadmaker Grant:
Recipient of a Breadmaker Grant:
" Over the summer [our daughter] wanted to visit Legoland. We were planning on visiting the park but before term started we had the opportunity to take a last minute holiday to a place just outside Paris. It was quite near to Disneyland so we thought we would go. [Our daughter] was absolutely delighted to 'upgrade' to Disneyland and was constantly counting down the days. She had a wonderful time there, she was fearless on the thrill rides, wanted to try everything and loved the castles and characters. The best moment was probably when she met the princess. We made an appointment to have a one to one meeting with a 'real' Disney princess, hers was with Sleeping Beauty. She's only just seven so still young enough to be convinced that this was the real thing. After we bought a photograph of the moment - she clutched onto this photo as if it was the most important item she had. When we arrived back home she insisted on taking the photograph to school to present in her class in a 'show and tell'. It was all a big success, it was wonderful that she felt special for having this experience, not many of her class mates have been to Disneyland. Thank you for helping to make it happen. "
Recipient of an Experience Grant
Recipient of a Breadmaker Grant:
Recipient of an Experience Grant
"I would like to say a massive thank you for the amazing chance to take my boys to the Warner Bros Harry Potter studio tour yesterday. They had an amazing time as did I. It was a rare chance for us to have a day out [... our son] has PKU but has recently been diagnosed with autism too so our family needed a nice day out to lift our spirits.
Thanks to the grant we managed to have a lovely day learning about how the HP films were made and [our son] loved every minute of it. We were lucky to have seen the Hogwarts at Christmas displays, it was truly magical. [...His] favourite part of the day was pretending to fly on a broomstick and having his photo taken on it. He also got a toy Hedwig the owl from the gift shop and has not put it down since we got home.
Once again thank you so much."
some of the families we've helped
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