The Campbell Burns Metabolic Trust supports families of children aged ten and under who have been diagnosed with a metabolic disorder.
The Trust was established in the name of Campbell Burns, born in January 2012 and diagnosed with Leigh's Disease in March 2012.
To provide education and raise awareness of metabolic disorders through the distribution of literature and involvement in local support networks
To assist in the relief of financial hardship for families of children with metabolic disorders through the provision of assistance grants and items of need
To assist in the provision of recreational and leisure time activities for children and their families
The Trust was established in 2012, in the name of Campbell Burns, born in January 2012 and diagnosed with Leigh's Disease in March 2012.
We are run by a small group of Trustees and Members on an entirely voluntary basis.
We are really proud to have two leaders in the field of Inherited Metabolic Disorders, and a Premiership Rugby player, as our Patrons
Metabolism is the process your body uses to get or make energy from the food you eat. Food is made up of proteins, carbohydrates and fats. Chemicals in your digestive system break the food parts down into sugars and acids, your body's fuel. Your body can use this fuel right away, or it can store the energy in your body tissues, such as your liver, muscles and body fat.
A metabolic disorder occurs when abnormal chemical reactions in your body disrupt this process. When this happens, you might have too much of some substances or too little of other ones that you need to stay healthy. All metabolic disorders have a genetic background, and some of them are expressed as specific genetic diseases.
(Information above from Birmingham Children's Hospital)
The Campbell Burns Metabolic Trust does not offer medical advice. We do not have a medical background, so if you have any queries about metabolic disorders, please speak to your doctor